Got A Right
Stimulators Lyrics

We have lyrics for these tracks by Stimulators:

Loud Fast Rules Your life's too set to ever see life - You'll…
Loud Fast Rules! Your life's too set to ever see life - You'll…
Run Run Run We must be movin! Our side is losing Don't want to…
You Will Never Break My Heart You will never break my heart You will never get that…

The lyrics are frequently found in the comments by searching or by filtering for lyric videos

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01Facts3:40

02Crazy House Rock1:54

03Cradle Robber4:28

04Dancing In The Front Lines2:23

10Rock 'n' Roll All Night2:49

PT3M41S

14Loud Fast Rules!3:39

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Most interesting comments from YouTube:

Tamra

4y↑7

William Welker that’s awesome!! I’m so happy when I hear some are getting pain relief! I just wish everyone had that available option. What works for some does not always work for others.....that applies to many different things....I did have good relief about the first 6-8 months. I was so excited!
Sadly, it didn’t last, and may have created more problems.

After surgery I had the vibrating feeling in my back which I assumed was because of the SCS, because, well, I didn’t really know how it was supposed to feel like once it was in.
Even tho it seemed to stop working, I continued to charge it and turn it on, I figured it can’t hurt (funny phrase of words😂)
The beginning of this year, I said screw it, I’m not going to bother doing this anymore, so I turned it off. The following month I was in such extreme pain, I figured I’d give it a try again. It wouldn’t charge, and the charging paddle would not make connection with the battery. So...I thought I could just leave it in and forget about it. Well, the vibrating/buzzing started in, and continued to get worse, till I said it had to come out. I thought somehow it was malfunctioning.

I went to a neurosurgeon to have it removed, he said in no way could it be causing that if the battery was dead, and the unit off. He wanted an MRI. I was told it was MRI compatible, they called to double check, turns out it was only compatible if I was having an MRI of my head. The dr wanted it out ASAP. I went into that appointment 100% sure it was the stimulator, that I never even thought of anything else.

I still have the buzzing/vibrating along with uncontrollable twitching, and last week woke up to what felt like my left foot being shocked. So bad I was screaming.

The possibility of MS has come up with my dr, my feeling is it’s AA....Adhesive Arachnoiditis as I’ve also had more than 20 ESI’s, and these are all symptoms.

The bad part is, my surgery that was approved before by my insurance company, I got a letter after saying it was not. Apparently, the code they sent in for approval was one number off from the one that was submitted after surgery. So I’m now fighting with the insurance company for thousands of $$$, and I am not moving ahead with anything until this is cleared up. I thought I could have the MRI done before the end of the year because my deductible was in. One thing I’ve learned thru the years, don’t trust the insurance company!!

Anyway, sorry this is so long, but I figured I’d share as it has been useful to me when doing research, to read thru comments to see others experiences. You get better info from the patient than you do from google 😃 If this helps anyone else, the cramp in my finger will be worth it🤣 I tend to cover up my pain with humor, I’ve done so much crying, only makes it worse.

Good luck to you! Wishing you many painless years ahead! xx

James Buchanan

Biospine:

I recently had a Bio-spine test trial installed in my back spine. It is the only thing that will help your back pain if you have arthritis in your spine joints.

The most common complaint is leg pain, but I have never had any leg pain. The wires they put in your back joints are not wires at all, they are twisted sharp metal rods.

The next couple of days after the surgery, I had no pain relief, so I contacted my Medtronic’s nurse. Over the phone she help me adjusted the stimulator settings, but still no pain relief.

I went back to bio-spine and got the rods removed from my back.

With the rods removed I instantly felt pain relief. It has been a few months now and the pain is still gone. Not 100% gone but about 80% which is great.

I decided not to have the stimulator installed in my back and Medicare paid for all of it except for $37.86.

Joseph Of Borg

4y↑2

wow this article sure is making the rounds again

that's over a span Of 10 years according to the article as I recall

given that the article also States they were doing sixty thousand of them a year that puts 600,000 implants with 80,000 report
that puts the failure rate in about 13%

even if you don't figure in the fact that some of those are infections Etc that are always risks with surgery
so that's much much better than say a fusion for example

Captain Obvious

@HlifeRomania91 Trial
Prior to trial, pain level was a 10

Day 5 of trial
Pain level was a 1, and completely off pain meds.

Received insurance approval last week for permanent, awaiting scheduling.

Have you considered or had it done?

All comments from YouTube:

Kenn Kiser

5y↑43

I had a Boston Scientific SCS implanted in March 2009 and it worked great for almost 9 years, then the battery quit holding a charge (8-10 years is the norm). It helped alleviate pain in my legs, feet and back, and enabled me to stand and walk a little longer. It also reduced my need for pain medication by approximately 30%. I'm having a new SCS implanted on Sept. 11, 2019, and I'm looking forward to it.

Kenn Kiser

5y↑6

@Marc Myers Doing well. No complications and getting noticeable relief with the new SCS.

Amber Faith Lee

4y↑2

I’m doing my trial right now for a nuvectra brand. I was told it would be MRI compatible but just read on their video it’s not. 😞 I hate disinformation. And my rep says it wouldn’t have to be replaced for the battery going out. Now I am totally confused.

Kenn Kiser

4y↑3

@Amber Faith Lee Sometimes they can leave the wires in place when the battery is no longer any good, and just replace the electronics module. Maybe the rep meant you don't need to replace it when the battery loses its charge because you can recharge it. But it does sound confusing so I'd ask very specific questions. And, if it's not MRI compatible (both the wires they use AND the electronics module) I highly recommend finding a unit or company that is. I couldn't have a severed tendon on my right bicep repaired when I had my previous SCS because it wasn't MRI compatible and the doctors refused to operate without an MRI.

Amber Faith Lee

4y↑3

Thank you so much for your response. From my research, the rep gets a nice $30,000 if I decide to do this. And while I don’t mind people being paid I do mind misinformation. I’ve had 42 fractures and have managed to live. I’ve been titrated down on my meds, which I have handled also. The only reason I agreed to this trial is I have been seeing this pain doctor for over 8 years and this is the first time he’s suggested anything because he honestly believes if anyone needs medication, I probably do. I am grateful I can still walk as I had fusion at T12, L1,2 and had C4-6 removed and donor bone and the titanium cage placed.

Tamra

4y↑2

Amber Adams Lee. I had one implanted in 2015, and was also told it was MRI compatible. What they didn’t tell, was that the MRI machine had to be compatible with the SCS.
It worked well for the first 6-8 months, after that, no good. I though I could just leave it in and not use it. Now I have constant vibrating, even with a dead battery.
I also have a titanium disc replacement, with a titanium cage above, which was not successful.

33 More Replies...

Deanna Platt

47w↑1

I just had surgery on Monday, and I'm hoping it works for me!! The recovery is what's taking my time to heal 🙏

Patricia Kranbuhl

1y↑3

This happened to me 3+ years ago. Immediately , less than 24 hours, I lost ability to stand. I needed a walker, something I didn’t need up to that point. Stimulator removed, but improvement has taken 3yrs and still not back to where I was.

Blue Sky

3y↑46

Going in for the trial in 2 week's..I can't wait!! The pain has litterally robbed me of my life!! Its worth the risk!! Praying this thing works 🙏🙏🙏🙏

Sebrina Phelps

I'm going in for the trial on march 3rd!

Nunley10

3y↑3

Has it worked for you. I'm going in 2 week's for the trial. I have mixed emotions about it. Thank you

Nunley10

3y↑4

I have lower back pain that goes completely down my left leg also the back of my leg is numb and the left side of my foot is numb

Angelica Valdez

3y↑3

How are you feeling ?

Jurgen Junco

3y↑4

I am In the same but as you are. I have to take care of a child with disabilities and suffers with seizures. And I can't even walk for a long time without feeling pain or discomfort. Good luck with your procedure and I hope it works for you

38 More Replies...

JR Bunch

2y↑11

I've had my Boston Scientific pain stimulator implanted in my back for just over 6 years now. During the past three years, never had it readjusted. Last week, the representative wanted to check mine, because I was thinking of replacing my leads with paddles.

The rep told m there were some new thing to try out and put in 2 new programs and a third one that also provided coverage to my hips when they hurt. The two new programs the company came out with, have worked great. The third program also works too. He did save my favorite program. I've not had any problems with my system, period.

My neighbors both have pain stimulators and like them very much. Don't remember the brand name. My neighbor across the street is a representative for the Medtronics pain stimulator and recently is transferred into their R&D program. I'm sure the pain stimulators don't work for everyone and I'm sure there are issues with some of them. I may have just gotten lucky with mine. And just remembered, one of my car club members got his BS stimulator several weeks after I did and is in his early 80's and has been doing great too....

A Moment With Nancy

4y↑48

I had a Medtronic placed 2 months ago. My representative from the company has been great. He’s been by my side since...just a phone call away.
I have to say , although I still feel pain, it is not ANYWHERE as bad as prior to having the device placed. I was stupid one day and let battery die. ( flu..in bed).
When I got out of bed, the pain hit like a Mack truck. I couldn’t believe THAT pain was what I had lived with for last 3 years. It knocked ne to my knees. I immediately charged battery, cranked this bad boy up, and within 15 minutes, the pain became tolerable and I found relief. I have established a few things....one major thing is that although my pain “waves” are scrambled so to speak, my body still knows when a crisis hits. So the pain is tolerable and I can function better, but my body becomes tired as IT knows the pain is still there. I still am glad I had it placed. Will I feel the same tomorrow? A month? I don’t know. All I know is for right now, I can still be on my feet, cooking dinner and making soaps ( business) in the afternoon. Before, I would be in bed at 3 or so because I couldn’t stand any longer without screaming, grunting in pain.
Just my long explanation of my experience thus far. Made You Tube videos ( Nancy Kelley Medtronic) chronicling my journey immediately after surgery.

Kewl Breeze

A Moment With Nancy Hi Nancy, how long were you down after the implant? What was recovery like?

Linda Weiss

4y↑2

I am so happy for you Nancy! You right, enjoy today, live today and see what tomorrow brings. Not fun to live with chronic pain, so if something helps you, enjoy!
This is why I went to my SCS, 10 month ago. No luck at all. But I had serious spinal surgeries, fusions with lami, hardware, etc before the SCS, so it wasn't much hope, yet, I still took a risk, bc of severe pain. BTW, I got non-rechargable battery, so much more convinient. Best of luck to you dear!

Donna Lynn

4y↑2

@Kewl Breeze I had about the same experience with mine as Nancy did with hers but I got a Boston Scientific. I was down for about a week and for me that week was agony. Didn't help they had me lying on my back when I awoke from my surgery. OMG I thought I was going to die! The first 2 days it hurt to breathe but it got easier and easier. I'm so so glad I got mine! BYE, Same as with Nancy, I'm horrible about forgetting to charge my device and Sweet baby Jesus you won't believe that's the pain you'd been living with for all those years! I am so forgetful and I'm a plus sized gal so charging with the belt won't work so I have to use the sticky pads. I will say the reps from BS are super friendly and really help with whatever I need.

Petra Majernikova

I had mine implanted last week. Still in a lot of post op pain. Still has to find the right programme. Mine was for chronic abdominal pain so bit more tricky to find that. One thing I don't like is that coz I am quite slim, you can see the stimulator a bit

R J

Petra Majernikova
Interesting story.
Did it help with your pain or did it cause harm ?

I’m getting ready for a permanent implant by Medtronic.

16 More Replies...

Super Nova

4y↑6

This used to be a last resort measure after treatments and surgeries failed, but now I've noticed the trend of pushing SCS as an non opioid option, even on people who hadn't had a failed surgery. Very risky. My first trial was cut short by a dural tear and spinal fluid leak. Didn't want anything to do with it til years later when I couldn't walk, and I chose to try again hoping the technology improved. Although very painful trial, I had it implanted and it did.help my legs but not so much the back pain.

FC LLC

2y↑4

Because they can bill insurance for nearly $100,000! Some people end up paying about $13,000 as their copay! It's absolutely horrible especially when low cost opioid analgesics work well for most people and fewer than 3% of the general population will ever develop addiction. As a physician, I'm disturbed by the trend to jump to invasive procedures and surgeries. And don't come back and say it's because of addiction. That's complete nonsense. It's very much overblown, especially when discussing people suffering with chronic pain.

Frank Kallio

5y↑10

My wife had av trial SCS installed on 9/18/18 and removed 9/25/18. She had a red spot on her back and then developed horrendous pain and delirium. She was ultimately diagnosed with spinal MRSA which tracked the leads and was hospitalized on 10/3 and this was discovered 10/7 by an MRI after originally being diagnosed with a fractured vertebrae which had healed. She underwent emergency surgery on 10/8 and was discharged into rehab. Her Vanco [antibiotic] level led to acute kidney failure and she was rehospitalized for 2 weeks and is now back in rehab.

Super Spooked

5y↑11

I am so scared now. I am being pushed to have one of these. Yes, of course the idea of not having to rely on pain medications forever is great, however, I saw the device, and I can't imagine how having a battery box implanted in my lower back, right next to where I had a two-level spinal fusion, would not cause more pain. So really I am on the fence and have no idea what to do. I appreciate people sharing their experiences with this! So sorry about your wife, hope she is doing better!

Debbie White

5y↑2

@Super Spooked I just had a permanent SCS put in 2 wks ago tomorrow. I am so glad I did it. It's not turned on yet but will be at follow up. I have spinal stenosis along with RA and have had fusion at c6 and 7 and have had pain for many years. A dr told me if I had more fusion I would loose some movement in my neck and may still have pain so with pain medicine not working unless dosage was changed I can see no alternatives than this. I'm thankful this option is out there and am so excited to feel better. Pain can control your life if you give in to it and life is to good to just exist. Good luck to you all on whatever you choose to do. God bless.

Rowie Millar

5y↑2

Omg

Lou Cipher

2y↑6

the problem with removing the pain is you wont know if you broke something
the device is working as intended but people are just dumb, they dont feel pain so they think its okay to overdo things that they shouldnt be doing

Haytch

2y↑1

@Super Spooked man Im in the same boat, double disc replacement and had facet block injections with no help, now an implant for spinal stimulator, I have a month to decide but I'm not sure what to do?

Largemouth Bassman

5y↑65

Back pain is no joke. This is terrible

Ellen Holland

4y↑5

Largemouth Bassman. I will try anything, to ease the pain I’m going through

A Moment With Nancy

4y↑5

Ellen Holland that’s where I was when I reached this decision. I was stupid the other day and let my battery run out. When I stood and that pain hit...I couldn’t believe that I had been enduring THAT SEVERE pain for about 3 years. Yes, I still hurt, but most of the time, I am not.

Sarah B

4y↑3

@A Moment With Nancy I've let mine die too and the pain is so much worse omg! Still only about 40-50% improvement but soooo worth it.

Chiari Queen

2y↑1

But my pain doctor is pressuring me to get one with occult tethered cord, post syrinx pain syndrome (spinal cord injury), a new syrinx ( syringomyelia ) among other issues like chiari malformation and small fiber neuropathy. CRPS.& allodynia which it wouldn't help. I am so upset at the over pushing of procedures without looking closely at the cause. I've called pain doctors for a consult and have been told more than once " we don't prescribe medication but I'd be happy to schedule you for an epidural!" With ZERO knowledge of the medical cause of my pain! Really? Too many times it's a shameless money grab! So much more profit than an office visit fir medication. Not everyone is a candidate for these things!

6.4WBHemiMomma

1y↑8

My third one will be installed next month. I was 35 years old when I had my spinal fusion that ruined my nerves in my back. The back and leg pain was debilitating. I swear by my spinal stimulator. I was able to get off of ridiculously strong opioids.

DealerSpot

1y↑1

What type of surgery and what level

Heidi Flyingmartini Hurricane

@DealerSpot I'm also wondering what level. I had ACDF surgery in March 2021 @ C5-7. I spoke with my Neurosurgeon today regarding my latest spine issues. He's referring me to a spine center to see if the stimulator will help.

DealerSpot

@Heidi Flyingmartini Hurricane latest spine issues ? Wdym. Also how was ur surgery goes ?

Heidi Flyingmartini Hurricane

@DealerSpot I recently had an MRI & I have a few C spine issues, mostly Stenosis which is especially bad wherw the plate is. The surgery helped for a while.

DealerSpot

@Heidi Flyingmartini Hurricane for me i am just 30 years and fracture my L1 in car accident.right now on bed rest for 3 months but they might need surgery

1 More Replies...

VideoGameObsession

2y↑4

I've had a spinal cord stimulator implanted for 16 years now (implanted in June 2006). I am going in tomorrow (in ten hours to be exact) to have it replaced with a new model. I've not have any issues with mine. It's helped me quite a lot, but I'm hoping the new model (also from Boston Scientific) helps more.

HlifeRomania91

2y↑1

How is it working?

Patricia Kranbuhl

5y↑22

Procedure performed 6 weeks ago. Walked into the procedure without assistance, have not walked without assistance since. Lost all feeling in both legs within 4 hours of trial implant; leads removed next day.
I was never informed this was a possibility. Regulation needs to be mandated, along with transparency between doctors and manufacturers.

Ellen Holland

4y↑1

I don’t believe this~ Lawsuit

DavesPainStream

4y↑3

@Ellen Holland Good luck with a lawsuit since they make it extremely difficult to sue medical professionals depending on which state your in, My wife was injured during labor with our first daughter where they missed 3 times while trying to get the needle set for the epidural with the 3rd attempt causing severe pain and her right leg to go completely numb. After when she got home she started having severe back pain with her back and leg going out on her together with no notice but extreme sudden pain and the leg going completely numb, Took almost 2 years before lawyers had enough info to initiate the lawsuit but once they finally got all the records from the hospital almost a year later they found out that the names of those who did the epidural all 3 of them were completely and totally unreadable to where "Nobody" knew who they were. Since we could not go after them individually the case was dumped since the cap against hospitals was only $20,000 so the attorneys deemed it not enough / worth their time and effort.

renae

4y↑1

How is your wife now? I had a similar situation with lumbar puncture 6 months ago. Wreaking havoc walking, sitting, daily living ever since. During lumbar puncture, hit a nerve in my leg and horrible electrical shock down whole leg. Hard time walking since

DavesPainStream

@renae Bedridden as symptoms have only gotten worse over time while were still trying to find a new doctor to take over her care since her current primary care doctor refuses to do anything since she doesn't believe in pain medication, There are only 3 pain clinics in our area and she has already been refused for treatment by one of them since they lied to our faces and claimed to not prescribe any medications once they realized they could not do epidural injections to her, And the other pain clinic dumped her as a patient while I was near death and in a coma as they tried to take advantage of my not being there and tried to pressure her into letting them do epidural injections to her back and accused her of lying about my condition as they then dumped her as a patient without tapering her at all. The third pain clinic is new and seem's to be having issues when it comes to taking new patients atm as they had some issue with doctors leaving

cmthomas07

DavesPainStream So sorry this happened 🙏🏻💕

11 More Replies...

B Hazlettreklew

4y↑16

I love my stimulator. Matter fact I'm charging it as we speak. Prior to my implant I was near useless and was taking advil like candy to try ease the pain and advil destroyed my stomach. My stimulator implant is awesome, I dont even take advil anymore and I can do so much more. Before when the neuropathy pain came on , I had lay down and would cry , now i turn my stimulator on and within 20 minutes I feel better. Sometimes I run it as high as 7.2 volts. Mine is a Medtronic..

Mychelle Miles

I am where you where. Severe low back pain causing nerve damage in my legs/feet. Eating Advil like candy (I used to be on hydrocodone and despite my strict intake at the minimum-~~as needed but no more than 1 pill a day-~~ I still had ill effects of the drug). I cannot walk/stand for more than 30 min at at time. I now get groceries delivered. House chores a nightmare to do. I have no quality of life. My ONLY saving grace is I have a sit down desk job...but even that is becoming intolerable. It never used to hurt sitting, now it does. Only my left side was impacted but 4yrs on, both sides are now inflicted. In short, I had to buy me a transport chair so my friends can push me around in places like the mall. I heard about this treatment from a FB post and decided to check into it.

Now I must say I'm a bit leery and terrified to give it a try. How long have you had your implant? How much overall have you felt improvement? I'm a bit worried about becoming worse---and I am trying to keep an open mind, realizing that treatment may not work for everyone---but I don't want to be worse off either...I suffer immensely enough as it is and I do NOT want to end up on disability and a pissy 1300 measly and monthly disability check.

Tamra

4y↑2

Let’s see if you feel the same in a year or two.

Tamra

4y↑4

Mychelle Miles whatever decision you make, please, do not let them talk you into any Epidural Steroid Injections. Good luck!

B Hazlettreklew

4y↑8

Tamra Hayes , I've had it since May 2016. So will be 4 years this may. I love my stimulator. It gets used often.. I'd say its improved my life by 50% at least. Definitely worth it. Not a cure but sure makes a difference.

Tamra

4y↑7

7 More Replies...

Make Racists Afraid Again

5y↑40

I’m a nurse and I had no idea.
Very disturbing. Medicine should first do no harm.

K B

4y↑19

U had no idea of the torture being Intentionally inflicted on people in pain for the last 5 years seriously?? ? Their being tortured because criminal junkies overdose in HEROIN and fentanyl so they refuse to help and treat everyone in pain like a criminal evil pos

Brad Percell

4y↑13

@K B And they are doing so all while illicitly profiting (in the million$) from addiction services (which have a proven 90% failure rate) while intentionally getting chronic pain patients addicted to Buprenorphine-naloxone (Suboxone), which is itself an extremely powerful opioid even more difficult to get weaned off of than heroin. The government-manufactured "opioid crisis" is one of the most widespread, most lethal human rights violations ever to take place in the United States, and it's being facilitated by our own corrupt government and deceptively promoted by the equally corrupt news media.

Heather H

4y↑8

If you are a nurse, then you should know that there is ALWAYS risk of harm with ANY medication or procedure.

5 More Replies...

Sonja Combs

4y↑16

I am one of those harmed patients. Not only did I have an infection directly after it was placed I started having lots of further neurological symptoms. One of the falls I had ended up breaking the device and it did damage from the inside to my spine. I knew something was wrong and the device company and my doctor ignored me. My doctor wanted to do an injection and when he did the fluoro his jaw dropped. It took months still, after that, to finally get it removed. When they did remove it I was harassed and shamed by reps and my doctor for choosing to not have another SCS implanted in it's place. They couldn't remove it all so I still have pieces of it. I would tell anyone thinking of having it done to seriously think about it. I'm 30 years old and my mobility would be better if I had never chosen to have one. We are so afraid of painkillers that we are maiming people. Mine wasn't done for chronic back pain, but due to the injuries I now have chronic back pain. I wish I could take it back.

Marvin Inman

4y↑2

What part could they not remove?

Christie in Texas

3y↑3

Boston Scientific told me mine was MRI compatible then afterwards came in and said it wasn't. That I would need an entire new system...less than 6 months after it was installed. Yet wanted me to pay for the brand new system. It made me physically I'll. It only helped for less than a month before complications started happening. I has it removed it was never worth the pain or the money.

Karen Terrell

I had a stimulator put in my back 10 years ago. A week or so later I was in the OR again having my back cleaned out and drainage pumps put in because I had staph in my back plus I had a pic line in for about 6 weeks. About 18 months later they removed my stimulator leaving the leads in, however, no one told me that part. I found out that the leads were peft in when the same Dr sent me for an MRI and the tech, thank God, said let me make sure you don't have leads still this Dr is notorious for leaving them in. After a quick exray said yep you have the leads still you will never be able to have an MRI again or it will rip them straight from your back and paralyze you. So now when they want to see how my back is looking from it deteriorating I have to have a CT mylogram done. I am so grateful for the tech that checked 1st. I called multiple lawyers here in Texas and was told by all of them that I had no case and by most of them that if I would have died then my family would have a case but since I lived I wouldn't. When I 1st called the office on a Friday night about the infection the Dr on call told me to wait and and come in early Saturday morning so I don't have to just sit and wait that it was prolly infected and that he would meet me there. So we went to the ER the next morning and he came in looked at it and sid ya, you're probably gonna need to have emergency surgery. My Dr that did the surgery also came in and without looking said oh it's probably not that bad just some antibiotics should be fine the other Dr said no she needs surgery and so the surgeon looked and was like oh you're right she does need surgery. Needless to say I don't see him anymore and when anyone ever says they are thinking about having a stimulator placed 1st I ask them who their Dr is and if they tell me him I tell them find another Dr but that I wouldn't recommending having it done for my worst enemy.

1 More Replies...

gassan chaiban

5y↑14

You cannot have a stimulator implanted unless you personally go through a trial to know if the device will help you in your case. You get to take the device for a test drive before committing to it being implanted, and it's only implanted if it helps your pain significantly during the test drive trial. One person's outcome has nothing to do with anyone else's, it's an individual treatment. This is also used in cases where more conservative treatments have failed.

j jon

5y↑6

The problem with the trial stimulator is that less then 90 % of the trial device is actually implanted in your body.theres also the fact that the paddle leads are not the same ones that are on the permanent ones.plus I've discovered that they used this trial stimulator was used also by their reps as a way to allergy test the patient against the permanent one.well I've learned that's impossible to do,considering 90 % of the trial never is put in your body.the trial stimulator is not the permanent one.the paddles,battery pack even the lead wires are different.also I understand they place the paddles of the trial stimulator farther up your spine so its installed around your t2. t3 ,closer to the brain,so it hives off more effective results,meanwhile the permanent stimulator is installed around your t8 to t9.big differance.so in my opinion the trial ,where its positioned in your spine, being different area from where permanent one is installed, is proof,they are having false positive reports from the positioning of the trial stimulator.plus these reps that are convincing you to get the scs,are being paid bonus checks of 36,000.00 for getting patients to have these devices put in.thats a fact.

Amber Faith Lee

4y↑1

Janet Canary thank you for this information. I know they installed mine at the L1 L2 level because I was awake while they were looking for a good location. I’m going to have mine (trial leads) removed tomorrow and am still on the fence. But it has helped with my neuropathy.
I’ve been seeing my pain specialist for 8 years and this is the first time he’s asked me to try anything. I was hoaxed and poked by the other 2 pain doctors I had. One even insisted I had bad knees and insisted on injecting my knees with rooster combe even though I insisted I wasn’t having problems with my knees.

Luis Berrios

j jon that’s incorrect. The permanent one is placed in the same position the trial was placed

Shirl

3y↑2

Yes you have to go through a trial but people need to be aware that the results you get with the trial may not be the results you get with the implant. I have chronic back pain, bilateral foot neuropathy , my left knee gives out with every step I take and I also have bilateral upper limb dystrophy. I had a good trial my pain level went down to a 6, the guy from Boston Scientific tried to get me to say my pain level went down to a 4 I wouldn't. The neurosurgeon decided to go through with the implantation. I wish I could go back. I had the implantation on 1/21/21 and they have me scheduled for surgery on 4/27/21 to have it removed. The pain I am constantly in is unbearable. I have a constant burning sensation where the battery is and you can see the battery trying to push through my skin. When the doctor examined me he noted that I have tiny blisters and flushed skin where the battery is. I constantly fall for no reason. I spend almost the entire day in bed. I wish I would have never had it implanted. I just want others to be aware that the trial could give different results. Read up as much as possible on every little aspect of the procedure beforehand. I wish every one the best of luck.

Forrest Ferguson

Forgot to say, ever since this pain has kicked back up I have had regrets every day about getting it implanted. It sucks cause it did help for about half a year, maybe 9 months, but now I'm back to literally just trying anything to escape the pain, but even having it off hurts me (feels better than when it is turned on though)

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Mike Wolfe

3y↑9

My heart go's out that that guy, but I'm willing to take the chance, I've lost a good paying job that I loved, I lost my life savings, I was injured on the job 3 years ago, and now being screwed by the insurance company for workers compensation. That guy looks like he has a nice place to live, and a nice truck, and thank God, and good for him, but I'm about to be evicted for the second time this year if I don't get disability soon. I've had the spinal shots, PT and a surgery on my lower back where they shaved some of my back bone to relieve the pain, but it didn't work and I can't get pain medication. I used to get upset about dealing with pain while washing my hands, or taking a shower, I haven't slept more than 45 minutes straight in the past 3 days, and typing this at 4am. Now I'm scared that my family will be homeless while dealing with chronic pain. So ya I would take the chance tomorrow if I could.

Racheal Rock

2y↑3

I feel ya brother

Rose Navarro

2y↑1

Don't do it please . I regret the day they touch me

nice•ĭ̈s•nice

Mike• it's 5•29•22 and hello from Florida🙋has anything worked for you•? Did you do the trial? Plz respond😢S•S disability takes Soo long, it took me 3 longgg yrs to get the ok•worse when the condition is not listed in their list of disabilities•

nice•ĭ̈s•nice

Hello from Florida 🙋@Rose Navarro I feel you• It didn't work for me• it's been 6mths now• but it's like nothing's there at all• there's this horrible tapping at the battery site• its amazing how the trial was successful• may I ask please? which have you done? This is my second device•

Lorena Ledezma

My pain Dr just offered to me today. Which now seeing this got me scared. But I've been in this guy's shoes since in pain. Did yours work out? I'm hoping it did. I'm tired if waking up in the middle of night with pain. I hope you respond and you and your family is doing well!! 🙏

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NO EXP

4y↑17

My stimulator saved my life I went from being on fentanyl medically required to keep me alive to being opioid free and only using Cannabis (illegally since my state still can’t figure out MM). If there is any advice I can give its to find a doctor that knows what they’re doing.

bdavie69

3y↑22

My experience was they were installed by less than qualified “Pain Management” Doctors. I think these should be installed by Orthopedic surgeons at the very least

Jeremy Jones

3y↑1

@And So It Goes Not in Kansas, at least. The pain doctors do the implanting, with a company rep in the OR with them and the standard staff for an outpatient surgery. No neurosurgeon or orthopedist or even general surgeon in the building usually.

Family First

3y↑2

@And So It Goes that's not true for every case.my pain management doctor does both the trial and the permanent so you're wrong

Family First

@Jeremy Jones exactly the same in DC

Donna Hague

2y↑2

@And So It Goes Not in Michigan… my pain doctor is an anesthesiologist and he put my trial and my permanent Spinal Stimulator in…

leslie upshaw

I’m about to get a Abbott spine stimulator placed in my spine here in LasVegas by a neurosurgeon for my permanent one. My pain doctor performed the trial but informed me he couldn’t place the permit one because it wouldn’t be stable when done. If I have any problems my surgeon stated he will remove it ASAP.

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John Martinez

5y↑56

I’m on my third stimulator, it’s painful when it goes out, and you have to endure the pain of having a new one, and the government cutting back on pain meds does not help

Ray Ray

5y↑7

The one I'm getting has a iPod controller that tells you when the battery is getting low. I can also upgrade any new technology through the iPod instead of new surgery.

Donna Lynn

4y↑2

How long have you had your stimulators before getting new ones? I've had mine for nearly 5 years. Shouldn't have to keep getting new ones like that.

Heather H

4y↑1

Are you talking about an entirely new stimulator or just the IPG? Do you have percutaneous leads or a paddle lead? Who has done your surgeries? A pain doc or a neurosurgeon? And what brand stimulator do you have?

Shaza Hardy

@Donna Lynn my doctor says that his patients are getting between 8-10 years out of each one.

Raven the Labrador

3y↑1

Hello I'm about to have one implanted into my back soon I'm just curious why have you had to have multiple devices installed and replaced what is the reason what happened to them?

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Holly Jaye

4y↑8

I'm a RN needing a 10-level spinal fusion. My retirement is nothing but pain on a daily basis. I have T11-L1 fused from a crushed T12 vertebra and get shocks" from that hardware placement when I turn or reach. Sometimes it spams and causes me to fall. Now, the surgeons are trying to push me into this type device. I'm doing TONS OF RESEARCH on it first. Hellova way to end up after 40 yrs giving to others as a RN/Paramedic.

NO EXP

Holly Jaye unfortunately it can happen to us at anytime in life. My back gave at 28 serving my community leaving me with intractable pain so severe it raises BP and HR. The spinal cord stimulator saved my life and allowed me to live without opioids but it’s far from perfect. 50% pain relief is the goal, and that is something I had a hard time with as I went from being extremely active to feeling 80+ years old. In saying that without it I would be dead as the opioids were failing me.

Karen Carpenter

What did you decide to do? I'm in the research phase now.

Bonnie Lee Braglia Tatford

I was a psychotherapist for 40 years before developing CNS Lupus!
Some days I can't remember what I had for dinner last night! It's so ironic, isn't it?

Carter

2y↑4

The FDA has no credibility on the safety of this device. These are the same people who said oxycontin was not addictive.

Katie Nehring

2y↑3

I have a Medtronic Sacral Nerve Stimulator for bowel incontinence, and it works great. Recently I slipped on stairs going to basement, now I am seeing a different surgeon who is removing it and will put one back in, I tried turning it off and had a lot of accidents, because of lack of muscle tone, so thankful for having such a life saving device.

Tonya Richardson

3y↑20

I've experienced shock from it and more pain and know it has stopped working and have to get it removed and bones replaced in my spine. I've never felt so much pain and muscle spasms since I've became very sick in 2015. Please keep me in prayer🙏🏽🙏🏽🙏🏽

Tineka Joy Horn

3y↑2

Praying for you. I wouldn't wish this pain on anyone.

S Lit

I don't believe in FAKE GOD and if FAKE GOD is so great why are we in so much pain and have to have these Stimulators

Egg Gorl Comics

🙏🙏🙏

Lou Cipher

2y↑2

@S Lit u been praying to the wrong god

Rose Navarro

2y↑1

Omg I get the same the spasm getting worst . This pain so bad .

Quinn

I just had spinal fusion and 23 days out of surgery I go to physical therapy and they do accupuncture and electric stimulation for 15 mins. When I got off the table he helped me as I stood I fell against the wall thank goodness it was there. Limped in aggressive pain to the counter. I called my Dr following day to discuss. I'll see how I feel in a couple days. But 1 treatment put me in bad mental health and unremarkable pain like I never had surgery. It's basically torture. Most studies were stated not actually radiography or x-ray . I agree this is not an effective treatment. Nov 16th 2022 TLIF L5-S1 FUSION WITH CAGE. Dec 9th 2022 accupuncture n electric stimulation . Dec 10 the 2022 aggressive pain . I do believe some electric stimulation such as a tens unit. Perhaps. But a scientific electric stimulation equipment high voltage idk I'm here. To say my spine is trembling from the pain. Which I can help but to cry 😭

Carter

2y↑2

After a decade of crippling back pain, I had a stimulator put in about 15 years ago. The doctor said that it would "stop the nerves from sending pain signals to the brain".
It was a joke. It functioned like a Tens Unit (electrical stimulator used in physical therapy). I couldn't believe what a crock this guy had sold me. I'm glad other people here have had good results but I caution you to really look into it before getting one of these things.
Eventually my back got better several years later. It just took a long, long time to heal itself.

Cindy M.

1y↑1

Can you tell me what kind of stimulator you had? I'm scheduled to have a Boston Scientific Alpha WaveWriter placed next week. I'm nervous but know I can't live with this pain.

Lori ann

5y↑4

At my last pain mgmt appointment , they gave me info on a stimulator and said it may work wonders. My follow up is tomorrow.. i was seriously considering at a later date because I'd have to be off work for the week for just the trial, then more time after insertion, which isn't financially feasible. Thank god I saw this!

Chanel Fitzgerald

4y↑1

I am in the UK and was given this option. Here you go for a two week intensive course as such to make sure you ready mentally, physically for this. I couldn't do my gut instinct said no I don't know why something bothered me about it. Glad I never had it although I am sure it's helped many others just not for me.

Chanel Fitzgerald

Humphrey Montgomery Oops answering a year later sorry! I have nerve damage in my calves and feet both left and right. I am in the UK too. I have had tens machines therapy, all the painkillers from gabapentin to tapentadol which I am on now. I don't know when your gut instinct says no, it's just no. If you read this, did you get anything done? If you did, is it working?

Michael Schulte

5y↑11

You can't narrow the indications AND take make it impossible for them to get their pain meds. There are risks for all treatments, that's why patients sign consent forms

S Lit

Mike...And if you don't sign them then there's no Surgery

Lynda Likes Lace

I wish I had seen this before my implant. I’m one of those patients that went from being able to walk to now needing a wheelchair to get around. Please. Please. BUYER BEWARE. 😢

Ancestral Bridgedreamer

I have had a broken lead since 2019 and was told that reprogramming was sufficient on one lead because I kept having burning pain. CRPS aka suicide disease is depressing and as stressful as the random fight or flight random burning pain 24/7 since 2009.

monkeynumber nine

2y↑1

Crps is what led me to getting my SCS.
It has given me my life back.
I will pray for you...I was very reluctant to try it because of what you described.

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Aco

5y↑29

I have a spinal cord stimulator. It works wonderfully. I have a life back that does not include pain meds. Research your doctor.

Ray Ray

5y↑5

That's my goal and hopefully I'll be there in a few weeks.

MartysMechanics

5y↑7

Same here. Changed my life

Sly Foxx

5y↑2

I have a spinal cord stimulator. It does not provide me with pain relief.

Linda Weiss

May I ask you please what kind problem did you have before SCS?
Did you have serious spinal surgeries, problems?
I had my SCS 10 month ago done by a Dr in NYC, who created them. But never had any relieve despite 7 diff programs, programmed for me by Abbott/St. Jude Thank you!

Donna Rittenhouse

4y↑2

Next month will be a year that I've had my spinal stimulator best decision I ever made along with one of the best surgeon next week I go for a trial for my neck pain hope it goes as great as the back spinal stimulator has been doing.

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Just N

5y↑5

I had a medtronic SCS implanted at the age of 21 to fix my arm neuropathic pain. I was left of with severe neuropathic back pain since then which is worse than my initial pain, had the device removed a little over a year after but the back pain is still persistence since then. This thing RUINED my life

Derek Walls

3y↑16

I love mine but I still need pain meds on top of it. I’ll say it got me back on my feet. I’ve had it for 2 years now. It’s allowing me to finish my active duty career. Limited but finish.

Stephanie Stlaurent

Marines? I'm active, and I'm on the trial now. I had to get an interbody cage fusion and 3 cinches in my left hip during my Combat Instructor duty. I'm hope this will help me through the CFT since I have really bad back and leg pain. I don't take pain meds as it's hard to work on it in my job. I just want to finish and retired with 20 years. Just want to know how you made it work.

Maru Parra

My doc told me 50% pain relief is total success, there’s no 100% success for some of us , but 50 is awesome for me ,,

Derek Walls

@Maru Parra I’m doing yard work today. I’m doubling up on pain meds to get through it.

Maru Parra

@Derek Walls awesome that you are doing it, I think my SCS and pain pills are a great combo

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Blue Roses Forever

1y↑1

I had a morphine pump put in and it got infected within a week of surgery then I had to have an emergency surgery to remove it and I actually died twice on the operating table and the doctors at the clinic we're still trying to get me to have another one put in no way it already killed me twice and I guess that wasn't good enough for them 😭

Green Dragon

5y↑14

It is vital to get variable information. In other words; how many people get worse, better or it doesn’t help. Are there means to investigate how it helps some and not others. It didn’t do anything for me and at times it was painful. Studies are necessary to determine how the device affects people, whether it’s a positive or negative outcome or somewhere in between. Companies are so busy trying to make absurd amounts of money that they are overlooking a vital aspect of any device or drug when they fail to do assessments of the variables that apply to the device/drugs, gathering enough data to figure out what or why the product is working or not, what helps them, to what degree, yada, yada, yada. I believe that since there are so many people in the world that those measures are not taking place like they use to.

Michael Collins

4y↑2

FOLLOW THE MONEY

TODDD OETKEN

4y↑1

This intensified my pain. I only used it a few weeks then just turned it off. I had it removed a month ago.

R35T Man

You made a very good point. This is why I am a bit skeptical about getting the stim on my back. I was hit by a car in August, 2019 and I am still dealing with pains, I also have cervical pains and headaches from my cervical. My arms get numb when I drive and hips are also in pain. I have pains through out my body which sucks; I am not able to sitting, standing, and walking for a long time. I am only able to last about 25 then I need to rest.

Yasss Gawwwd!

3y↑1

My friend is considering this NOW. So I’m glad to see this report.

Eric

5y↑11

Well clearly the idea can work, in some cases, they just need to keep testing to find out which cases those are, and especially undo them if a patient is clearly not responding well to it.

Dorami Sierra

Mine had to be removed within 15 min while in recovery My left leg, foot with horrific electrical sensation, pain, needles and fire. Doc didn't even move me to the surgery suite, he just pulled it out right there in the recovery chair. 😥☹️

Djinnger

5y↑12

I don't know about Boston Scientific, but I had to have a full psych evaluation & week-long trial before I was approved for my first Mestronic device. It worked beautifully! The second one was nowhere near as effective, but I had a full revision to a new MRI-compatible model that is back to the battery style I originally had.

I feel badly for the guy in the video, but there are no guarantees with any pain relief procedure, whether it's an SCS, spinal fusion, injections, or anything else. Back problems also tend to be degenerative, so it stands to reason that his condition has deteriorated over time. The SCS isn't necessarily to blame.

Ellen Holland

Lot of People uses this for a Law Suite

Tamra

4y↑1

I had a St. Jude (now Abbott) implanted. I had to go thru the psychology exam also. My trial only lasted 3 days because the programming unit malfunctioned. Dr. determined that was long enough since I did have about 50% pain relief.
Have an appointment today to see about having it removed. Can’t stand it anymore, and don’t recommend it to anyone.

E. Turduckeny

4y↑1

@Tamra Can I ask if you had it removed and how that went? Went to the surgeon today with my mother to see about having hers removed (also St Jude). 2 years now and she's never seen a benefit. It pains her quite a bit at the site (shocks, heat, spasms) and we're concerned about recovery afterward. She had a very rough time of it when they put it in.

Tamra

4y↑1

@E. Turduckeny yes, I had it removed last November by a neurosurgeon. The removal surgery itself was fairly easy, depending if you have leads or paddles. I had leads. The first few days were pretty painful, but I was given pain meds. I do have permanent damage from it. Buzzing/vibrating in my back and down my legs. Shocking sensation, when I touch my left abdomen/chest area, I get a buzzing feeling in my left foot. Same thing happens when I blow my nose, or sniffle, I feel it in my foot. My back pain is more intense now than it was before. Some days I have a hard time walking, my legs feel like jello, and my feet buzz. It’s awful!! These things should be outlawed!! If you’re on Facebook, there are several failed spinal cord stimulator groups that have a lot of good information. I recommend getting it removed, so she can at least have an MRI should she ever need one. I was told mine was MRI compatible, but I found that not to be true afterwards (only with an MRI of my head)
Good luck!! 💜

E. Turduckeny

4y↑2

@Tamra Thank you so much for the info! I'll check out the Facebook groups. We're a bit worried about the removal, but it can't stay in. She's had increasing pain since she got it and deeply regrets getting it. Her pain management doctor made it seem like the obvious choice and really didn't give enough information about it's realities prior to implementation. And we were much too trusting (and desperate for relief). We do independent research and crosscheck EVERYTHING now.

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Laura

5y↑5

I have a friend that had a spinal cord stimulater put in her. It didn't help till one day. 16,000 dollars later they didn't even want to remove it. She had to threaten with news coverage on this. Sad.

L R

49w

I had the Medtronic placed 2 years ago. It took 4 months to heal and I had significant pain relief. But it didn't last. I only had another 9 month until it stopped working. The leads migrated and I'm bedridden again. Now, the Doctors don't know what to do. The rep is trying to convince me the leads are in a better place, now they moved. Can confirm..they're not.

Marian Pizeno

4y↑8

I'm having mine put in at the end of the month and while yes, I'm nervous, just for the fact I may be able to stop taking my pain meds or at least reduce my pain meds, it's worth the risk! I want my life back!

JoeTrout

4y↑3

Good luck mine helped alot. Post surgery pain “recovery” was horrible extreme pain for a week

Marian Pizeno

4y↑1

@JoeTrout thanks for the heads up! :)

Brian Hagglund

3y↑1

It's been 4 months, how do you like it?

Marian Pizeno

3y↑1

@Brian Hagglund I LOVE it!!! Absolutely the best thing I've done... I've been able to come off most all my pain meds! I highly recommend it!

Brian Hagglund

3y↑1

@Marian Pizeno That is awesome!

Dorami Sierra

2y↑1

I just had my SCS inserted and removed after the procedure. I went in smiling, looking forward to back pain relief. I was doing well, walking around, slowly, with a cane. I came out with burning sensations, electricution feeling, swelling and pain. I'm disappointed ☹️.

Julie Youngblood

5y↑2

I'm on my 4th device. The 1st one actually did have a short that sent a much stronger electrical impulse and froze me in whatever position I was in. My mother would literally push me over to unlock the currents hold on me. It was a bad battery and leads from Medtronics in the early 2000's. No trouble with the next one. Last 2 are made by St Jude/Abbot. Still work well but have never been a replacement for meds or instead of pain meds. I have no clue if the device has caused more damage since my first back operation in 1992 left me with a paralyzed leg for a while and never regained full use. Each rupture and surgery did more damage.

Super Spooked

5y↑1

Thanks for sharing, that is a big thing I wanted to know, if people who had the implant still had to rely on pain meds. My guess is yes, but they advertise this to 'replace all meds' and I'm just curious if your doctor has been sympathetic to you still needing meds, or if they try and tell you 'too bad' and leave you on your own in more pain. There's no way having electronics implanted in your body can't be somewhat uncomfortable.

Jimmy (James)Carroll

I was pressured for over 8 years by Pain Management Drs to get the SCS implant, I finally gave in, I chose to get the rechargeable device because it can last up to 15+ years vs 4-5 years, I tried it for a year and had it reprogrammed several times in that year,it does not help me, I still have the implant but I rarely turn it on, it is a pulse stimulater, maybe I need it to be constant stimulation, IDK 🤔

life after 65

My husband had the spinal cord stimulator and it got infected. They have not put another one in and the doctors have to fight the insurance companies to even approve of them. His doctors also will give him nothing for pain.

Angelwatching

3y↑1

I had to search hard to find something like this. All I could find was testimonial after testimonial after testimonial. I’m disgusted. I’m three weeks out from SCS implementation. These last three weeks have been a living nightmare. They put a foam in my incisions. They said it contained a time release lidocaine and antibiotic. I had a near deadly allergic reaction to this foam. Each time I went in for a follow up They continue to tell me it couldn’t be that. They also failed to inform me that it can cause joint pain and muscle spasms which I’ve been having regularly. My CRPS seems to have worsened and I have yet to find a comfortable position to lay in. Last week I was charging my device and I was burned on the inside of my body where the battery pack is. Ever since I got this installed I’ve been in a world of hurt. They keep telling me I’m only three weeks and got three weeks ago and it’s going to get better. After the trial, they asked me to report how much pain relief I think I may have received. I hesitantly said 30%, they asked me if they could fudge is my number and report 50%. They made it seem like it was in my best interest. If I reported 30 I wouldn’t have been eligible for the device thereforeMissing out on this opportunity which seemed like a once in a lifetime deal. I tried so hard to decide if they were looking out for my best interest or if there was something bigger involved… May be a financial kick back for them? Do they really have my best interest at heart? Is it normal to receive a thank you card after receiving surgery? I’m confused although I remain hopeful that once I continue to heal things will get better although I am terrified to turn my stimulator back on and get burned once again when it needs charging

nicholas guillory

3y↑2

Sorry to hear about your horrible experience. Some of these doctors do push these devices due to kickbacks. I had my permanent implant done on June 16th and I’m back doing normal activities. I still have to wear a lumbar brace for another few weeks. My pain level has dropped about 70% and I have no pain or discomfort at the incision site. I also had a reaction to that foam but they changed the dressing like 2 days post op and never had an issue since. I hope your able to get your issues resolved so you can get pain relief. Praying for your healing

nicholas guillory

3y↑1

I must also state that my doctor does things different than most from what I have seen and heard. When he put the leads in for the trial he actually put in the permanent leads and cut the pocket for the permanent so it would be ready for the permanent if my trial was successful. He said by doing this he has had a 90% success rate because the permanent leads are already there in the right spot. After the trial was done I did have a lot of pain for about 7 days due to the 2 incisions. After the permanent implant I had just mild soreness for like 2 days

Angelwatching

@nicholas guillory Thank you so much for your response and for your prayers. I’m so happy to hear that you’re having a positive response to the device. 70% would be an absolute dream come true. I’m very happy for you. I’m still struggling and actually considering getting the device removed. But either way I remain hopeful.

Martin

5y↑23

You need to be very careful to avoid an infection during the 2 week trial and after the implant operation and never allow injections of any kind near the implant site. Can they give you your life back? YES! Get an infection during the trial or after implantation and you are in big trouble!!! Worth the 4% infection risK? For me YES!!! Hint- Get a good surgeon.

Jay Davis

4y↑1

Martin getting my stimulator put in on 2/5/2020. My trial was awesome and I am getting a paddle lead installed. St. Judes and about 2 other surgeons will be in the OR. I am excited and I pray I can get my life back in track.

Martin

4y↑1

@Bob the Builder CSF leak headache is the worst headache x100. Yeah I know what you mean. Stand up for short time to check for headache. Then longer time each time. Get a headache, lay down....and stay there.

Musicmaker 4HIM

2y↑1

I developed a very nasty and super painful staph infection during my trial. It was a nightmare.

Martin

@Bob the Builder I know what you mean. A CSF leak headache is really really bad.

Martin

2y↑2

@Musicmaker 4HIM Very sorry to hear that you got a staph infection. Hospitals are not the safest places!!!

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Robert Leftwich

I had a St.Jude device put in 6 years ago. Today it has an arcing or short that shoots an electrical shock pain at the bottom of the dev

Gerard Cottrell White

5y↑10

I'm glad they air this I'm one of those people that have this in my back and I'm in more pain then b4 every body thought they I was talking pain meds to get high. I'm going to get this out of my back in December I can't wait till this is done.

Tamra

4y↑1

Gerard Cottrell White just came across this video. Have an appointment today to discuss having mine removed. Can’t stand it anymore. I have constant buzzing/vibrating in my back and down my legs, even tho the unit is off, and battery is dead.
Just wondering how you are doing.

Petra Majernikova

3y↑1

Did they take it out? I have an appointment in 2 weeks to talk about removal but was told they are quite hesitant to take it out

Petra Majernikova

3y↑1

@Tamra hi hun. Did they take it out? I have an appointment in 2 weeks to talk about removal but heard they dont like taking it out for some reason

Tamra

3y↑2

@Petra Majernikova yes, I had it removed in November of 2019. Unfortunately, the damage that it has done is permanent, and has left me basically bedridden. The buzzing/vibrating has not gone away, along with increased pain. If you are on Facebook, there’s a couple of failed spinal cord stimulator groups you can join that have a lot of good information.
Good luck!

Tamra

@Petra Majernikova do you have paddles or leads? I had leads so it was a lot easier for it to come out. I’m hearing from a lot of people that have paddles, that they may not be able to remove them because of the laminectomy that was done putting it in. But, there are some people in the groups that were able to get their paddles removed. Make sure you see a neurosurgeon and not a PM dr.

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Ric Force

5y↑8

I have a Boston Scientific and have had no issues ,it does help during the day when I can be still but I still need meds to sleep and do anything,it’s a tool in the box that should include opioids.

Super Spooked

5y↑1

Thanks for this info. I was wondering if anyone who had this still has to rely on pain medication even with the implant. I am being pushed to get one and I am very scared seeing that it is literally electronics implanted into your body. I also do not want it to complicate the spinal fusion I had over a year ago.

mattipps

3y↑1

@Super Spooked I have the Boston scientific one, still need pain meds but mostly for the pain of just having the unit in me. It gets very sore ( I am not a big guy) Other than that it is great and takes care of 80%-90% of the pain I was having in my shoulder.

Mrs. Rachel Gerald

2y↑1

Today is my one year SCS anniversary. I am so glad I decided to get it.

HlifeRomania91

Is it still giving you relief?

M

2y↑1

I HAD ONE MANY, MANY YEARS AGO BUT IT DIDN’T WORK. NOW I HAVE A DIFFERENT DOCTOR THAT TALK ME ABOUT GETTING IT AGAIN SO, I DID IT. I HAVE IT FOR 3 MONTHS AND I LOVE IT, IT WORKS. THERE IS ONE THING. WHEN I HAD THE TRIAL MY PAIN WAS MUCH , MUCH LESS THAN NOW THAT I HAVE THE IMPLANT, BUT IM HAPPY. My first was put in at a hospital and my second in a surgical center.

HlifeRomania91

Is it still working?

M

@HlifeRomania91 I currently have this one for 5 months and it’s good for 3 years.

James Buchanan

Camiko Smith

4y↑2

Having the Spinal cord stimulator was the worst decision I ever made in my life the spinal cord stimulator caused infection that took all feeling from below the breast down

Anita Kasen

OMG! I'm so sorry that this happened to you. I hope that you can get medical treatment that will help.

Christopher Ewart

4y↑3

I had one installed and had it taken out, the wire kept moving on my spine and was sick of getting electric shocks where I shouldn't . Gave Doc benefit of the doubt and let him replant the wires 4 times, I got fed up and said take it out !!!

Julie Timmons

Becky Hall has it helped? Any problems? TIA

Richard Ryder

Mine did not work. It brought me more pain than my lumbar... I felt like I was being burned inside. I am now a candidate for the pain pump. Hopefully I will find some relief, as I have been dealing with this chronic pain for 12 years.

HlifeRomania91

Did you get the pain pump?

Richard Ryder

@HlifeRomania91 I'm approved for it and will get it very soon. The pain pump trial was a success for me and it will be so good not to have to use pills anymore. They no longer worked for me, but the injection of morphine they used during the trial lasted two and a half days for me. I still had a little pain, but I went from a level ten to under four that morning and that is a huge success for me. No pain in my hips or my bi lateral pain/feet/sciatica. The only pain was a little higher in my back between my shoulder blades. That may be something they can tweak with the dosage, but I am very hopeful after 12 years of this mess! I wish someone had told me about it a long time ago.

Joseph Of Borg

4y↑2

Ro5w311

3y↑5

if you do the math it all adds up to the risks they tell you about, not everyone is going to get help with it and some will have difficulty's, but to me if its between being in pain, not walking, or it fixing the problem, ill take the risk after 10+ years of the pain.

nicholas guillory

I had my permanent implant done on June 16th and it has changed my life. I have around 70% pain relief. I suffered with chronic pain for the last 20 years and was living on pain meds. Now I have cut my pain meds in half so far.

Tonya Richardson

3y↑2

Man I wish I would have never gotten it myself. It has mad me worse than what I was and having to get it out due to burning moving and pain. It just stop working out of no where.

Amber Hammer

Where was your pain/reason for having it implanted. Did it help until it randomly stopped working?

Annette Smith

2y↑2

I have the Abbott DRG and the Nevro HF10. I wouldn't be able to walk without them

Beth

43w

Great to hear. I start the trial in two weeks with Nevro

Laurie Salisbury

50w

I’m supposed to be getting a Medtronic spinal cord nerve stimulator (trial) for my chronic bilateral foot pain. I’m not so sure after watching this video whether to stay with the spinal cord stimulator or do the peripheral one first. Thoughts?

bambi teague

44w

I have them both, which sounds crazy. But, one helps with lower back and the other helps with leg and straddle pain. I personally think it’s all about who implants your device. I am blessed to have a amazing Doctor, but I have heard that some don’t get much relief. So, if you feel confident that you have a good Doctor I would absolutely recommend. I will say that depending on your level of injury may determine the out come. I don’t think anything can take all your pain away 100 percent. Just my opinion. But, it does make my life to where I can function. Before I was on high amounts of pain medication and still couldn’t find any relief.

Derrick, D. Carter

41w

I had the The Abbott scs implanted 4 weeks ago. It works to a certain extent. 2:36

Maru Parra

When I had my Boston Scientific SCS implanted, I had to go through a 2 week trial and the cables and device were external. How can people get so injured like in the video, did they also go through the two week trial ?

Real Talk

48w

The trial is totally different which you should know. These people have the permanent one so why are you comparing the two

Rebecca Sucharda

I have the Boston scientific implanted in me also for the trial it did not work for me at all because was lift home without the antibiotic for the procedure and after the procedure did not get antibiotics but I was on the trial for about a week and in that time I've gotten really really sick I had spinal fluid leaking in my back I had a severe migraine I could not eat or drink I stayed in my bed for a week and a half while I was on trial one day in the week Thursday they had to readjust the implant and then that Friday Friday when I went to the doctor's office I had a good high fever but they didn't do nothing but they did take leads out but he did not gauze me up at all

A C.

When they are doing the procedure are you asleep, partially asleep, awake or what? I'm very worried because I've had various problems with anesthesia and so-called twilight sleep. Will I remember talking to the doctor? Thanks for any info on your experience.

S Lit

AC....They put me out...I just had it done 8 day ago...8/24/21....as far as remembering if you talked to the Doctor...I did but I've been on Narcotics for 31 years and not effected with my memory...You'll need a Driver so have them in the room when the Doctor comes in...mine seems to be working but I'm not sure...mines by NEVRO

Mrs. Rachel Gerald

For the trial implant, you're awake. For the actual implant, usually 6-12 wks after the trial, you're put under anesthesia.

Ray Ray

5y↑7

I'm getting one this Friday. 2 people called and asked if I watch this show last night. I've had 3 back surgeries, 27 epidurals, 2 sets of the nerve numbing, 8 shots each time but didn't qualify for the actual nerve burning. I did the psych evaluation and the trial on this SCS. Mine was St Jude Medical now Abbott that has invisible therapy meaning that you don't have to feel the shock pulses. I got 65% relief which is much better than the opioids. I just hope they don't mess up on the permanent one being installed with the paddle leads which requires cutting into my thoracic spine and removing part of a bone to make room to install this type of lead in the dural space. Maybe they can remove some scar tissue in there where I had surgery at the T6-T8 area.

Jaded

How did your surgery go? How are you feeling?

Ray Ray

5y↑2

@Jaded It went good. I'm still having problems but it hasn't been 2 weeks yet. I just bumped the settings up again.

Jaded

@Ray Ray im scheduled for next year. Wanted a fresh opinion about it. What company did you use?

Ray Ray

5y↑2

Abbott bought St Jude Medical. That is the one that I got. You don't have to feel any shocking and it's recharge free. It came with an iPod to control the settings through bluetooth. The generator, battery, will have to be replaced every 7-8 years with the settings that I am on which will be 12 unless I don't have to go as high as that as I did on the trial. The paddle lead on the permanent one is supposed to cover more nerves. I have to slowly increase the strength every week instead of all at one time per the rep. Good luck.

Jaded

@Ray Ray thank you for answering.

10 More Replies...

Captain Obvious

2y↑1

Going in for trial, TOMORROW 9/1/22!!

I can't lie, I am a little nervous about only doing a 7 day trial, nkt a LOT of research shows that this will help me.

On a positive note, of it does not work, they can remove the wires.
On a pain scale of a 9 out of 10, I am more than ready for a change!!

HlifeRomania91

How did it work? Are you in less pain?

Captain Obvious

HlifeRomania91

I am desperate for not only pain relief but to be able to function . I am thinking about hz ing it done. Thanks for replying and happy it is helping you.

Captain Obvious

@HlifeRomania91 good luck!!

George Fisher

My trial is one week away. It will be a Medtronic. Seems to be a real roll of the dice, doesn't it?

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Chad Christman

5y↑2

I've had a baclofen pump to use and I've had three Replacements in line was just fine no problems here.

Evan Vernadakis

I go for my surgery to get a baclofen pump tuesday

Kalen Greene

2y↑1

@Christina Hall It is a device used to help those who have severe spasticity and tone usually from an injury to the spinal cord or brain or both. The device is implanted and medication (Baclofen) is placed into the spinal cord through a catheter. hope this helped.

Christina Hall

@Kalen Greene has it helped Ive got several problems with my back spinal stenosis bulging disk and 3 back fratures and 2 rib fratures there afraid to do major back surgery I have had blood clots in my lungs a few times and had to come off the blood thinner due to bleeding ulcers

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Small Town Girl

5y↑3

I have one & it worked maybe 6-12 months. I'm having surgery to get mine out. It also was like shocking right before it quit working.

Tamra

Denene Neufeld how did it go? I have an appointment today to see about getting it out. It’s off and the battery is dead. I have constant buzzing/vibrating in my back and down my legs.

1 More Replies...

Elizabeth Ferrari

1y↑2

You guys need to realize that these reviews on here could be written by anyone. Possibly a sales rep. Or manufacturers, or doctor's. Don't trust them all.

Hatsune miku💙🦋

5y↑5

Omg I have this spinal cord stimulator implant and I have been trying to figure out why I was having excessive amounts of heat coming from my implant:-( I now have this rare disease called C.R.P.S/R.S.D because of this nightmare!! Wow I can't believe this!!

Grammy Grammy

5y↑3

Wow, I have a stimulator because I have RSD/CRPS...I'm pain free after 3 years of being on Gabapentin and Hydrocodone, I'm so sorry for your pain! THIS IS THEE WORSE PAIN EVER. I hope you find a doctor who knows crps and how to treat it ❤

Sarah

I also got RSD in my legs after having my stimulator. Im sorry to hear that you are dealing with that misery.

Sheryl Brown Smith

I had the Nevro stimulator put in in January 2019. The wires came out of my skin and a open wound were the wires were. I had infection!!! Doctor in twice to put the wires back in place. This didn’t work so The device was removed in June 2019 and I developed severe headaches while in staples and recovering from the removal of the device! The pain management doctor said the headaches were not caused from the removal of the device! I have severe headaches daily every since the device was removed! I was never checked for a spinal leak or infection, never!!! I have been to several neurosurgeons, spine specialists and hospitalized running test, MRI’s and spinal taps hoping to find the cause of my headaches, nothing except disc herniated, disc degeneration and arthritis!!! I’ve nerve blocks, Botox injections, more injections and nerve ablation! As of this moment I’m still having severe headaches and neck pressure with constant bouncing and feeling lightheaded type feeling. Feels like something is wrong at my brain stem where my headaches are! All this happened when the stimulator was removed!!!

Wise Old Lady

3y↑2

They wanted me to have this. When Medtronic Rep called me 3 times after the test asking when I was going to do this is when I said no. Stop the bus.
Thank for this video. I tried to find 1 person one year out that would do the surgery again. I found none!!!

Spunky

3y↑1

When they work they are great. When they don’t it’s just a living….

TheKbear1877

Omg this is so scary my ortho doctor asked if i was interested in this procedure today during my visit i said i was but i am seriously not interested after this, i had a procedure gone wrong in 2016 which led me to have 5 emergency surgeries and left me fighting sepsis, 3 months in the hospital, i went in for a colostomy reversal and i almost lost my life wasn't comforting when the doctor that took over said unfortunately i fell in the small percentage of people that its happened to and i had no control over any of it, this i do i will pass on this procedure

Rose Navarro

2y↑1

I can't believe this I been suffering with this spinal cord simulator and to find out they put the lead in the wrong place . I need help been in so pain

HlifeRomania91

How did it go are you feeling any better?

Jake Hollcroft

3y↑3

Okay so 60k people get it per year, but only 80k complaints in 10 years? That's about 590,000 without complaints, right?

Mrs. Rachel Gerald

Right

Ray Otberg

1y↑1

My Abbot stimulator has been a godsend. I feel bad for the people it doesn't work for, but this "news" story really emphasized those who it didn't work for and only a quick clip of the guy it did. Poor journalism, if you can call it that.

kdshenderson

Oh lord I got mines today. I hope I have no issues

WAKE UP AMERICA AND RESIST

I had Medtronic and it lasted nine years and need the battery replaced, didn’t last a year and Medtronic didn’t care. Now I have a Boston Scientific battery and and controller with my old Medtronic leads and it works fine. I would recommend Boston Scientific , better control

firetech700

My oncologist is against this, simply due to infection risk from surgery. I’m set to start treatment for a transplant in June or July, once I have a match found.

Robert Leftwich

Mine after 7 years, it’s frying my flesh, 30% Has gone bad, this guy , 3 years ? I would question them intensely. Yes, most people can have them removed safely, but hey, that’s 2 times going under with health factors, reconsider major risks on your brain ! I’ve had over 10 Surgeries and have felt degrading memory and now looking at maybe Alzheimer’s or Dementia 🎉 I’d rather die in my race car or getting hit with a bus , than blinking over and over at the same TV show. ((basically you just need to own a couple of Videos, and your pea size brains can be saving money from Renting and more)).

Diana Topoulos

2y↑2

I had my permanent Neurostimulator implant,after a successful trial in April 2022, and they paralyzed me. Really think about it before youdecide to do this. It ruined my life.

omar parra

2y↑1

Can you give me more info please

Diana Topoulos

I just had my implant in April 2022, and they‘ve paralyzed me too!

zig zagerman

Oh my God is it permanent

NoJusticeNoPeace

5y↑2

You know what's completely free and medically proven to help chronic pain? Meditation. But no one gets rich off meditation, so doctors don't push it the way they push pills and invasive devices.

Make Racists Afraid Again

5y↑1

NoJusticeNoPeace
CBD or THC can be helpful for many patients.

NoJusticeNoPeace

5y↑2

+Make Racists Afraid Again Psychoactive drugs like CBD and THC work because they duplicate or mimic chemicals already present in the brain, or which the brain is capable of manufacturing. This means through the use of meditation, biofeedback, and discipline it's possible to teach the brain to duplicate the effects of every shamanic drug known to humanity. All those serene meditating monks are stoned out of their gourd on their own brain chemistry.

+It's me, Joolz Have you received professional training in meditation? It's a science. You are attempting to reprogram the way your brain works to induce certain specific mental states and to allow you to gain intentional control of processes which are ordinarily autonomic. A qualified roshi (teaching master) at a meditation teaching centre can help you learn how to meditate properly. I'm sure you're familiar with Thích Quảng Đức, the Viet Namese monk who set himself on fire to protest the war and who sat quietly while he burned. If meditation can allow a person to put aside the agony of burning alive, then it can certainly help you with your chronic pain if you learn how to use it properly.

NoJusticeNoPeace

+It's me, Joolz There is a medically documented case in which a Hindu meditation master underwent open-heart surgery without any anaesthetic using only meditation. In case you're unaware, open heart surgery involves cracking and spreading the rib cage. There is ample proof that meditation can be used to block pain completely -- if done properly. Like any other skill, meditation requires training, practice, and discipline.

John Hadley

4y↑4

I am having severe pain. We r all different. Wish I never did it.

joe silvestri

HI JOHN..WOULD U PLEASE TELL ME WHAT BRAND /MANUFACTURE YOU HAVE
INSTALLED. AND TELL A BIT MORE ABOUT WHATS GOING ON WITH YOUR STIMULATOR PLEASE. I'M SCHEDULED FOR CONSULT IN MAY 2020. I'M ALREADY ON THE FENCE ABOUT IT BUT SEVERAL PAIN DOCS & SPINE SURGEONS TELL ME DIFFERING OPINIONS ABOUT THESE . DID YOUR TRIAL HAVE YOU SUFFERING IN PAIN TOO, OR WAS IT ONLY WHEN FULLY INSTALLED? KINDLY REPLY- JOE / MARYLAND

Danny Alford

I feel the same way John Hadley. It screwed me up.

Danny Alford

Don’t do it.

shalic graw

Read this: “Implanted Spinal Cord Stimulators for Pain Relief: Illustrating the FDA’s Dangerously Lax Oversight of High-Risk Implantable Medical Devices” Public Citizen, June 2020 Michael A. Carome, M.D. -The report’s overarching observation in the conclusion on page 50: “Taken together, the observations summarized in this report demonstrate that there is NOT a reasonable assurance that implanted spinal-cord stimulators for pain relief…are safe and effective for their FDA-cleared or FDA-approved uses.”

Larry Anderson

I’m a Medtronic implant recipient. It’s a worthless piece of old tech we used to call Tense Units. Just as worthless 100% more expensive. Don’t do it.

H.O.H.

2y↑1

I'm here because I'm considering one. The pain in my S1 is unbearable at times and I get numb I'm my left leg and left feet and sometimes in my right leg and feet

H.O.H.

@DreamersNights Wow...I hope everything works out for you. My actually surgeon wants the pain specialist to hold out on trying the procedure until they see what the CT Scan of my spine says. I had the scan done on yesterday and I'm waiting to hear from them. I didn't think thr procedure was that painful but I take your word for it

H.O.H.

2y↑1

@DreamersNights those pain meds work for a few days with me. My body gets immune to them quickly. I didn't get the contrast this time but I'm have before and I don't like the feeling. I'm tired of all of these trips to the doctor. Along with the pain it's mentally draining

H.O.H.

whitemanfromtown I will bring that up to my doctor. I'm in way more pain after I had my fusion last year than I was before I had it

H.O.H.

whitemanfromtown wow. God bless and I hope your surgery and recovery goes well

Craig Crawford

5y↑11

With Trump and his cronies, I fully expect more sad stories like this...

tooldforthis68

5y↑8

silly post...I guess he's responsible for hemorrhoids, also.

John Serenita

5y↑8

Please stay on point these useless post doesn't help or hinder the story, it just injects politics where it doesn't belong.

Craig Crawford

5y↑2

@John Serenita Evidently you don't know nor understand...I suggest you research the lobbyists whom lobby to have this crap passed, and guess whom does that, the FDA, guess whom lobbies to have this crap approved even when they shouldn't be, eh....This entire administration sucks and will only make things like this far worse! It's a matter of morality sports fan, politics just happens to be a part of it, eh....

2 More Replies...

Gillian Jacques

51w

My daughter has this for nutcracker oesophagus, given her a new life

Elizabeth Ferrari

52w↑1

I'm losing my sanity due to my pain. My insurance company denied my request for the scs trial. Said it was an experimental device and I didn't meet the health requirements.

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