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Bottom of the Stairs
Acid Aura Lyrics


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Most interesting comments from YouTube:

@jessikahbraginton9050

Thank You for your dedication !!
What a wonderful physician who really knows what he is talking about!!
I Have EDS/ POTS/ MCAD/ Occip Neuralgia a couple dozen other dx and a few funny little gene mutations in the SLC6a2 and SCN11Genes, MTHFR, elevated VGKC ABS, MALS...and a Cervical burn spur !!!!!!
All was managed for years then a period of great fatigue, and an injury were I probably did EDS damage...ended up with cervical swelling, eye hemmorhage, and moderate anaphylaxis , 2 trips to the Emergency...( they didnt know what to make of it !?!?) that was about 30 months ago...then about a month after injury daily Convulsive Syncope started. Is it Neuro Cardiogenic or is it Orthostaic Convulsive Syncope? Is it the SLC6a2 variant and POTS or is it a Hypoperfusion kink in my spine?
Damage to my MALS causing further restriction? Is it damage to the Brachial Plexus ? Is it Multi- Plexus Damage?
Vagus Nerve Damage due to EDS damage and POTS Dysautonomia?
Is it CCI / AAI...am I mis dx...was Morvans missed?...MS or MECFS?...have had extensive testing.
6 years of dx, travel and over 30 speacilists.2.5 years of convulsive syncope issues. Now working with my 7th neuro/ 3rd Dysautonomia speacilist..and trying to find my new 8th Cardio that speacilizes in Dysautonomia!!!!
I cant drive, travel or even ride anymore with out a serious convulsive syncope event, I have had to close my business and have not worked in 2.5 years...I am mid aged. This has been such an exhaustion to me and my family.
It is a great dis service there are such few physicians World wide for Dysautonomia/ EDS / MCAD Trifecta Syndrome Overlaps.
Hope for Hope someday I will have answers and no more convulsive syncope!! Physicians like you who keep researching and provide great care can and do make it possible💙🦓🦓💙



@seannolan3927

this is crazy to me man. I thought I fix'd my gerd through my diet.

I ended up eating a bit worse, and honestly I always felt a bit of "relfux" but not to the extend as I used to. So I ended up eating bad food again.

I ended up experincing Crazy Dizzy spells, Heart Palputations (which Now. I 100% believe are Esophohus spams) I went to doctor, to doctor getting blood tests done. And they're all saying "your heart is fine"

I never though about going back to the main problem "my gut is still just unhealthy." I semi healed it, but I didn't fix it. The bandaid was ripped off and re-infected.

I'm currently doing way better than I was months ago... The spasms have been reduced, but I do sometimes feel a bit... "brain foggy/lightheaded??" But no where near as bad as 3 months ago where I felt like I was going to pass out.



this is a real fucking eye opener. I need to stick to my diet, and start adding some probiotics and fermented foods to get better.

my plant based diet was good at culling the pain, but I still consumed Spicy foods and toato sauces. which im taking out right now.

I need to cure my gut to prove I can get rid of this.



@seannolan3927

@steezyjoe917  honestly, no fix.

I've only ever found band-aids.

I haven't had reflux in a very long time because well... I haven't eaten any foods from restaurants or fast food/takeout.

The moment I cheat and have bad food, it comes back instantly. I spend 1-2 days recovering and weeping, then return to my boring diet with stronger resolve because of the pain

That's just half the battle though, I simply cannot eat foods with more than 1-3 ingredients out side of a few items I've learned doesn't effect me.

I literally only eat ripe fruit and juice for breakfest. Snack on some low ingredient foods for lunch (corn flakes with water because milk is an irritant) also low fat candy with gelatine helps as well for me (avoid all oily candies like chocolate and snickers. Gummies seem to help the stomach with the gelatin I've found.

And dinner is generally either rice, a pasta or potatoes with unseasoned chicken, salt to taste. With a single sauce that's OK for me.


I feel great as long as I don't cheat.



@steezyjoe917

@@seannolan3927 Hey Sean, thanks for responding even 2 years later, band aids are better than nothing mate,

a diet plan sounds great, noted that i wont eat very fatty foods with more than 3 ingredients, and sheesh brother have you tried almond milk, i dont really like the taste but it might just have to make do,

i love candy so yup low fat candy with gelatine,

chocolate, gotta give it up,

and plain foods like rice unseasoned chicken etc,

thank you alot for having these for me and others who need the help, I am going to try fast as i have hypertension,

high blood pressure, until i am normal again lol,

and i will start my diet journey to help my gerd and hbp,

Thanks for letting me know about what i didnt but should have, fast foods and acidic foods to back down on, and dont cheat your diet,
Thanks sean u absolute soldier, best of luck with life in general mate
👍💯💯



All comments from YouTube:

@karlforster4282

I have today went to seek medical help for my sore throat heartburn and fuzzy head and have been told this is most likely gurt which before today I knew nothing about. I am very distressed at the thought of this being part of my life forever and very scared as it seems my life will be forever changed but also glad I have some sort of explanation of my symptoms that I would not wish on my worst enemy. For everybody who has commented my thoughts and sympathy is with you guys stay strong and healthy

@Guiltylikeacocobean

Super glad you are covering Ehlers Danlos Syndrome!! Hate all the comorbid conundrums with this condition!

@CaringmedicalProlotherapy

We are so blessed to have the opportunity to use this platform to spread awareness!

@bash4374

Thanks doc, I have cervical stenosis and nerv compression and Gerd, fatigue and heavy legs have just started visiting. My doc just keeps testing and testing and you have enlightened me in just this video... You are my hero right now

@Aphrodite_ErosLuvChild214-80

I have Gerd and spinal stenosis too I also get headaches I get off balance and voice loss , I get these moments of extreme salivating and nausea it's just awful I get woke up gaging and choking

@cechzc2e

I have spinal stenosis, and my doctor won't take on my migraine, slow paralysis, instabity, brain fog, and all the other symptoms that go with this. 10 years in now, and I am beginning to have zero hope.

@bash4374

@@cechzc2e I'm so sorry to hear this. Ten years is such a long time so I understand your feelings of hopelessness. I want to encourage you to do vagus nerve exercises, it really helps to calm the body and once the body is calm, I actually experience less pain and fewer symptoms. I do exercises with Sukie Baxter on YouTube. Trying to make it my daily routine.Praying for your strength and courage to be renewed and for your healing to unfold swiftly

@cechzc2e

@@bash4374 than you for the kind words. ❤️

@DkReaction27

I feel like i will have a stroke 😭😭😭😭

@maha_sage

This looks like a great channel.
I pat my back for this discovery!

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